上海袁立公益基金会 > 他们的故事 > 【袁立公益】坟茔青烟散尽，田舍也忘了他们的名

【袁立公益】坟茔青烟散尽，田舍也忘了他们的名

任能平与任能力是我10年前刚做公益的时认识的一家住在陕南的人家。由于他妈妈相貌端正，所以这家的孩子也都是非常俊秀，我无法把他们与矿工联系在一起，皮肤白皙，模样娟秀。

Ten years ago, when I first started engaging in the public welfare activities, I met Ren Nengping and Ren Nengli. They were brothers bonded by blood, yet they were also bound together by a similar misfortune, both diagnosed with advanced pneumoconiosis after working as miners for years.

认识任能平的时候，我给他换了肺。从他肺中拿出煤球的时候，我就在边上，并用手触碰那片病肺，肺中取出的煤球极硬，捐献肺的整个过程非常的曲折，要从昆明一位同意捐赠的脑死亡病人的身体里取出肺，再坐飞机运到换肺的这家医院。必须要求有时间段，民航飞机也必须保证准点抵达不延迟。

Between the two, Ren Nengping, the younger brother, first received my medical assistance to undergo a lung transplant. During his surgery, I was in the operating room, witnessing the entire procedure, and I even touched with my own hand the diseased lung removed from his body. It was no longer a lung anymore but broken pieces of hard black coal-like fragments. Then, a new healthy lung was placed in his chest after traveling a long and complicated journey. Harvested from a brain-dead donor in Kunming city, Yunnan province, this valuable organ was soundly preserved and immediately transported by air to the hospital over a thousand miles away in Wuxi city, Jiangsu province. Every step of the transportation, including the landing of the plane that carried the organ, must be achieved according to strict timelines, for any delay would be fatal for saving his life.

一番周折肺移植手术虽然完成了，但并没有成功，第二天就去世了。我当时经验不足，其实他的身体条件已经不适合做这么大的手术了，虽然求生欲强，我也无比希望我的朋友能够延续生命。即使我也知道他换了肺之后，每个月的排异费也要耗费大量金钱，我已经做好心理准备了。

Unfortunately, although the transplant was completed through all the challenges, Ren Nengping passed away the next day. The fact was that Nengping’s health condition had been no longer eligible for such a major operation. However, out of his strong desire of survival and my best wishes to extend his life, we decided to give it a try nonetheless and strive for a miracle. At that time, I was inexperienced in pneumoconiosis assistance, which led me to place too much confidence in the effect of human’s willpower. As a result, I was already mentally preparing myself before Nengping’s surgery for the high cost of post-operative treatment to minimize the risk of organ rejection.

但事实证明，事情的结果与个人决心毫无关系，它只和整体的一个身体综合指标相关，比如说像这样的一个晚期尘肺病人，还适合做这样大的手术吗？并且这么多尘肺病农民工，是不可能都通过换肺来解决问题。局限与资金，健康肺源、医疗水平等方方面面。我们只有做好前端的工作，前端的防护，前端的宣传，才是驱走病魔的正途。很可惜，许多粉尘作业相关的大企业，怕我们会搅乱工人的心情，以已经保护的很好而拒绝我们进场宣传。

Ren Nengping’s death proved that one’s determination plays a much less decisive role than his or her real physical condition in the treatment of pneumoconiosis. Since then, I have been wondering whether it is the right choice for pneumoconiosis patients to undergo a major operation like a lung transplant when they are already in the advanced stage of the disease. Moreover, in consideration of its various limitations, including risks, high expenses, operative difficulties, and a short supply of organ donors, lung transplantation may not be a suitable solution to meet the medical needs of the still-growing number of people suffering from pneumoconiosis. Faced with these problems, the YuanLi Foundation has made great efforts to raise awareness of hazardous dust exposure on work sites besides funding for curative care. We believe that “an ounce of prevention is worth a pound of cure”. Only by preventing this disease from occurring in the first place can we truly eliminate it. However, major firms that involve dust-exposed work refuse our attempts to promote awareness of pneumoconiosis among their workers, using the excuse that they have already implemented comprehensive employee protection measures.

更多的小企业小作坊，更是连门也找不着，隐藏的很好。他们出于种种目的视我们为“搅局者”。我们真希望上天能够给我们开一道门，让我们能够去宣讲尘肺的预防与康复。而不是现在这样，耗到了三期尘肺，在病人非常被动的情况下，才给予他们医疗救助、孩子助学乃至制氧机的发放。

Meanwhile, many small workshops engaged in such work remain hidden from public view, making it difficult for us to even locate them. All these companies regard the Foundation as a “disrupter” to their business. Alas! How sincerely we hope for an opportunity to teach people there about pneumoconiosis and raise awareness of it! Then we can shift from being passive to being active, helping more people at risk of occupational dust exposure, in addition to those poor patients who are already in the late stages of the disease.

任能平还有一位哥哥叫任能力，不久以后也去世了。去世前一天我恰巧去看望了他，他一直也希望我给他换肺，但是鉴于他弟弟的这一次失败，我坚决不会轻易冒险了。走到他的床边我问他: 你埋怨我吗？没有给你换肺。没想到，他非常温和的微笑，用尽最后的气力说：我不怪你，不给我换肺。转天凌晨，他就不行了。凌晨时分我接到了他媳妇的电话，说他在医院去世了，要连夜把遗体运回他们的村子，此时我正好住在他们村庄边的招待所，于是赶到了他们家，参加了任能力整个下葬的过程。

Ren Nengli, the elder one of the two, died not long after his brother’s death. I happened to visit him on the last day of his life. He had always held out hope that he might regain his health through a lung transplant and asked me for help. However, considering the failure of his brother’s surgery, I didn’t dare to take any risks. I asked him if he blamed me for rejecting his request. To my surprise, his lips curved into a weak but soft smile. “No,” he said with his last bit of strength, and this was his final word to me. Nengli left the world early the next morning. In the small hours, I was awaken from my sleep by his wife’s phone call which informed me that he had passed away in the hospital and would be brought home overnight for burial. As I was staying in a hotel nearby his village when the call came, I rushed to Ren Nengli’s home and accompanied his family during the funeral.

我所认识的农民工在这十年当中去世了很多很多。有些人是在帮扶的过程中和我结下了深厚的友谊，他们每一个离开都会让我难过静默。他们曾是那么年轻、眼睛里充满生的渴望和期许，他们的音容笑貌至今还萦绕在我的脑海里，他们都是很善良的好人，平生没做过什么出格的事。经济发展的30年，国家翻天覆地的变化，真的是要感谢他们每一位，平凡的像一片片落叶，然而每一片落叶都应该有它的名字，都应该有人纪念。

Over the past decade, many of the migrant workers afflicted with pneumoconiosis and assisted by the YuanLi Foundation have passed away. Through the Foundation’s aid projects, I came to know these people and established close friendships with them. I witnessed the last sparks of their lives and mourned for each and every one of their departures. Even today, I can still remember their faces vividly. These good people died young with hope for a future unfulfilled. They had never did anything socially harmful throughout their lives, but they and their colleagues — the hundreds of millions of Chinese migrant workers — have greatly contributed to our nation’s rapid economic growth since the reform and opening-up. We should appreciate their contribution. These people lived ordinary lives, and then died quietly like leaves falling from a tree, yet each fallen leaf is unique and has its own name that should be memorized.

我们认识的这些人，他们都已经走了

还有很多很多………………………………

尘肺病农民工的群里面，如果有一个人去世了，他们常常会说：“弟兄好走，天堂无尘。”我也学着他们的口吻，愿你们灵魂安息。

On Tomb-sweeping Day, I’d like to express my heartfelt condolences to them by borrowing the words that are frequently used by these pneumoconiosis patients in their chat groups when someone passes away: “Farewell, my friends. May you be free from pneumoconiosis there in heaven. May your souls rest in peace.”

——袁立2023/4/5

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